American Liver Foundation
75 Maiden Lane, Suite 603
New York, NY 10038
Phone: (800) GO-Liver (465-4837) toll-free
(888) 4HEP-USA (443-7872) toll-free
(212) 668-1000
Email: info@liverfoundation.org
Website: www.liverfoundation.org
Click on "Chapters," chose a state/area, then click on "Support Groups."

B Informed Patient Conference
Annual conference for people with chronic hepatitis B.
Peggy Farley, Community Relations Coordinator
700 East Butler Avenue
Doylestown, PA 18901
Phone: (215) 489-4900
Fax: (215) 489-4313
Email: info@hepb.org
Website: www.hepb.org/patients/patient_conference.htm

Look for information on clinical trials at:
CenterWatch
This is a Boston-based publishing and information services company and a business of The Thomson Corporation. They provide information services used by patients, pharmaceutical, biotechnology and medical device companies, CROs and research centers involved in clinical research around the world.
Website: www.centerwatch.com

ClinicalTrials.gov
This site provides regularly updated information about federally and privately supported clinical research in human volunteers. ClinicalTrials.gov gives you information about a trial's purpose, who may participate, locations, and phone numbers for more details. The information provided on ClinicalTrials.gov should be used in conjunction with advice from health care professionals.
Website: www.clinicaltrials.gov

Daily Strength HBV Support group
Email: Nicholas@dailystrength.org
Website: www.DailyStrength.org and www.dailystrength.org/support/Gastrointestinal_System/Hepatitis_B/
To join the hepatitis B community support group, go to:
www.dailystrength.org/component/option,com_comprofiler/task,registers/cid,106/Itemid,43

Health Resources and Services Administration (HRSA)
Click here for information on reduced health care cost from HRSA
www.ask.HRSA.gov

Hepatitis B Information and Support List
Website: www.geocities.com/Heartland/Estates/9350/hblist.html
An email discussion and support group for people who have chronic hepatitis B virus infection. To subscribe, send a blank email to: hepatitis-b-on@mail-list.com

Hepatitis Support Network of Hawaii
Prevention, screening, testing, immunization, education, treatment and support for chronic viral hepatitis B or C and/or co-infection with HIV.
Website: www.idlinks.com
Ken Akinaka, MRA
Phone: (808) 221-6204
Fax: (808) 738-5797
Email: KenAkinaka@aol.com
3254 Olu Street
Honolulu, Hi 96816

HepCats Support Group
is the only open Hepatitis Support Group on Oahu. It is open to all people with Hepatitis C or B and their family members with a community forum, free dinner and expert speakers.
Life Foundation in the Gold Bond Bldg.
677 Ala Moana Blvd., Rm 226
6:00 p.m. on the 3rd Thurs. of every month
Between Keawe and Coral Streets. There is street parking.
NOTE: The Building's Keawe St. side door entrance is locked at 7 p.m. Please come on time.

Contact person: Tim Fedorka, Facilitator
Phone: (808) 375-8160
or contact Hepatitis Prevention, Education, Treatment and Support Network of Hawaii
Phone: (808) 221-6204
Health professionals and hepatitis C treatment & support providers are welcome to the free dinner and Community Forum portion of the meeting with expert speakers from 6:00 pm to 7:30 pm. The support group portion of the meeting from 7:30 pm to 8:30 pm is for patients, their families and care givers only. Others may also attend but must have prior approval of Tim Fedorka (contact info above)

HepB.tv
HepB.TV is the first online television network for hepatitis B. It offers original and syndicated video and audio programming to educate Asian Americans about hepatitis B, and also provides resources to raise public awareness of the need for testing, vaccination, and treatment. Be sure to recommend this cutting-edge resource to patients who might be interested in its content. To visit HepB.tv, go to: http://hepb.tv

HBV Adoption Support List
An online forum for adoptive or biological parents of children living with hepatitis B. This is a restricted list to protect the privacy of parents and children and requires pre-approval by the list owners to participate. Go to: www.onelist.com/community/hbv-adoption

Hepatitis Foundation International
Website: www.hepfi.org
Support information, including finding and starting a support group, telephone support, and physician referral can be accessed at www.hepfi.org/pages/support_start.html
Call (800) 891-0707 for local support group information.

Information for patients with hepatitis B or hepatitis C and their families
www.hepatitisdoctor.com

Latino Organization for Liver Awareness (LOLA)
Support groups meetings are held at the New York Blood Center, 310 East 67^th Street, New York, NY, 10021.
Phone: (718) 892-8697
(888) 367-LOLA toll-free
Website: www.lola-national.org

National Task Force Hepatitis B Focus on AAPI
Janelle Tangonan Anderson, Coordinator
Phone: (651)647-9009
Fax: 651-647-9131
Email: janelle@immunize.org
Website: www.hepbtaskforce.org

MedHelp
Q&A from our Ask The Doctor Forums
www.medhelp.org/HealthTopics/Hepatitis_B.html

The Partnership for Prescription Assistance
This site brings together America's pharmaceutical companies, doctors, other health care providers, patient advocacy organizations and community groups to help qualifying patients who lack prescription coverage get the medicines they need through the public or private program that's right for them.
www.pparx.org/Intro.php

Physician and Patient's Guide to Hepatitis B
The 2007 edition of this popular handbook features new updates to provide physicians with the latest information on the incidence, transmission, detection, prevention, and management of HBV infection and liver cancer.
http://liver.stanford.edu/files/2007Handbook.pdf

PKIDS (Parents of Kids with Infectious Diseases)
P.O. Box 5666
Vancouver, WA 98668
Phone: (360) 695-0293
(877) 55-PKIDS toll-free
Email: pkids@pkids.org
Website: www.pkids.org

PKIDS has many resources for parents whose children have chronic hepatitis B, hepatitis C, HIV and other infectious diseases. They also support a chat forum that is open on Tuesdays. The chats are currently geared toward parents.

The webpage for the chats is at: www.pkids.org/vc_livechats.php PKIDS also has a moderated chat with an expert every few months. Watch their website at www.pkids.org for information on this activity. You can go to their Virtual Connections webpage at: www.pkids.org/virtual_connections.php It lists and links to the listserv, forums, chats, blog, and a podcast which is in the process of development. The link for the parent listserv is at: www.pkids.org/vc_listservs.php

PKIDS provides a listserv that communicates via email. At the bottom of the page, it notes that we are starting forums for kids and teens. The forums page is at: www.pkids.org/vc_forums.php

The difference between the two is that the listserv is strictly via email, but the forums are more like an online community, so the members go to the forum website when they want to communicate with the other forum members.